Informative Web Links Index Page

 

ALS Specific

ALS Forums and Chat
An open support community for people affected by ALS/MND.
www.alsforums.com/

ALS Independence
People Helping People
http://www.alsindependence.com/

Bruce Edwards Foundation for ALS Research
The Bruce Edwards Foundation provides funds to medical research facilities dedicated to slowing the progression of and finding a cure for Amyotrophic Lateral Sclerosis (ALS). The Foundation was created in memory of Bruce Edwards, who died from ALS after a 16-month struggle against the disease. Bruce was the longtime friend and caddy of PGA golfer Tom Watson.
www.bruceedwardsfoundation.org

Prize 4 Life
Seeking to create breakthroughs in effective treatments for Amyotrophic Lateral Sclerosis (ALS) using the leverage of large inducement prizes.
www.prize4life.org


Clinical/Research

ALS Genetic Mutation Database
Alsod.org, the online database for ALS/SOD1 genetic mutations, is designed to provide both the scientific community and wider public with up-to-date information on SOD1 associated ALS.
alsod.iop.kcl.ac.uk/

ALS Patient Care Database
ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
www.outcomes.org/als/

ALS Therapy Development Institute
A non-profit bio-tech organization whose mission is to seek, develop, and deliver therapies to slow, arrest, and cure ALS.
www.als.net

American Society of Human Genetics
The primary professional membership organization for human geneticists in the Americas.
www.ashg.org/

Dana Brain Web
Dana.org serves as a gateway to brain information, containing general information, current research and the latest news about the brain.  "Brainy Kids Online" offers a site with activities, puzzles, links to excellent educational resources, and lesson plan suggestions.
www.dana.org/brainweb

The Eleanor and Lou Gehrig MDA/ALS Center
Founded on the belief that biomedical and genetic research are the most effective, long-term approaches to the eventual conquest of human disease. www.ColumbiaALS.org 

The Robert Packard Center for ALS Research
This center is one of the nation's largest ALS comprehensive care programs. Here you can find information about the center, links to other information sources, and articles about ongoing research at the Center.
www.alscenter.org


Health & Medical

Christopher and Dana Reeve Paralysis Resource Foundation
Created in 2002 to provide a comprehensive, national source of information for people living with paralysis and their caregivers.  The PRC is a one-stop center that offers information quickly and compassionately. 
http://www.paralysis.org/ 

Communication Independence for the Neurologically Impaired
CINI seeks to improve the quality of life for people with ALS/MND by disseminating information about communication technology.  Site includes a guide to commercially available devices and a chat room regarding augmentative communication.
http://www.cini.org/


International Organizations

ALS Society of Canada
This a national voluntary organization is committed to supporting research towards a cure for ALS and supporting ALS Partners in their provision of quality care for persons affected by ALS.
www.als.ca

International Alliance of ALS/MND
Associations on the Internet A group of more than 50 patient support and advocacy groups worldwide that have joined together to provide support and the exchange of information between the associations.
www.alsmndalliance.org

International Organizations, Motor Neuron Disease Association (UK)
They are the only national organization in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.
www.mndassociation.org


Travel

Transportation Safety Administration (TSA)
Information for travelers with disabilities and medical conditions
http://www.tsa.gov/travelers/airtravel/specialneeds/index.shtm