I am inviting you to participate in the Irvine Walk to Defeat ALS on November 9, 2019, as a fundraiser or walker with Ed Stevens, or by donating to the cause for one of the fundraising team members.
It's been over four years since I was diagnosed with ALS. It has been a bumpy journey as my strength, coordination, and mobility has deteriorated. I am lucky or stubborn enough that I can still talk and type, and move (with help). I have outlived clinical trials for failed experimental treatments, and look forward to new experimental treatments to advance a cure. Research to find a treatment for this disease is the ALS Walk funding goal, and why I need you on my team!
The ALS Walk in 2018 brought together many family and friends from my work at ACCO & JCI for a casual morning at the Great Park in Irvine, and I expect to see some new faces at this 2019 walk.
Thank you for helping team EDVENGERS reach our fund raising goal!
Please consider joining Ed & Alana Stevens, with our team Edvengers, in the Walk to Defeat ALS®, or choose a team member from the list and donate to our cause. We walk to support the Orange Country ALS Association Chapter this year and the wonderful Doctors and Clinic Staff at the UCI ALS Clinic. This is our fifth year of fundraising for the ALSA.
November 9, check in at 8:30 AM
The OC Great Park - Irvine, CA
6950 Marine Way, Irvine, CA 92618
Why We Need Your Help
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone. Presently there is no known cause of the disease, not even eighty years after Lou Gehrig was struck with ALS and made this disease well known with his name. No treatment or cure exists. Research for a treatment or cure is expensive and is almost all funded by charity donations. It is also expensive to provide care for people living with ALS, and their family needs, expenses that Medicare and Healthcare Insurance do not cover. These are some of the lessor known areas that the ALSA, and your ALSA donations, help out (in addition to research funding). .
Thank you for helping team EDVENGERS and the ALSA.