My name is Maryann Maggs-Eaton and my lovely
husband is Stan Eaton. In 2016, Stan had foot drop, the doctors thought
was a pinched nerve and needed back surgery, he also needed rotator cuff
surgery. Stan was a long shore man for twenty years so these surgeries
were not a shock. He had two surgeries and no improvement. Stan then
needed an additional surgery for spinal stenosis. However, since
everything was happening to the left limbs, he was referred to a
neurologist. The first neurologist we saw suspected ALS. After several
tests, we attended clinic at UCI. Like many others, we prayed it was
anything but ALS. July 2018 is when we got the ALS diagnosis. We
currently attend the ALS clinic at UCI, and adore our team of
physicians, PT, OT, Speech and OUR Manny (medical equipment rep).
put us together with the AMAZING ALS Association, OC Chapter . This
team is absolutely a light in the scary journey that we have been forced
to embark on. The clinic provides us with a support group that we
attend monthly; additionally they teach us how to navigate our way thru
the health care system. About 3 months after diagnosis, Stan was having
balance issues . The association stepped up with their loan closet for
equipment. The loan closet is nothing short of amazing as Medicare only
pays for one large piece of equipment every 5 years and we needed to
save this for our fantastic power wheel chair.
Last year I
participated in the Golf Tournament, we attended the Holiday party (I
won the ugly sweater contest) ha-ha, and I did the ALS Irvine Walk and
this year Stan will join me. While we cannot change our diagnosis, we
can live our best life. We love to travel and did our first cruise last
month. We enjoy traveling in our mobility van with our AWESOME orange
and black General Lee inspired power wheel chair.
fortunate to have a loving and supportive family, and an incredible
group of friends, employer (mine, as Stan is retired), doctors, and of
course the ALSAOC.
I am a lucky woman as Stan has the sweetest
disposition, cutest freckles and never complains, or asks “Why Me?”
Since there is nothing we can do to change the diagnosis, we adjust to
our changes and live our best life.
Sending love, prayers, and positive energy to you all,
for helping us reach our fundraising goal! Together we can make a difference in
the lives of those affected by ALS. Our team is committed to raising money to
support people in our community with ALS and spread awareness of the urgency to
find treatments and a cure. Please consider joining our team in the Walk to
Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
minutes a person in this country is diagnosed with ALS and every 90 minutes
another person will lose their battle against this disease. ALS occurs
throughout the world with no racial, ethnic, or socioeconomic boundaries.
we’re participating in the Walk to Defeat ALS. To bring hope. To raise
awareness. To provide resources and services to families free of charge. To
help unlock the mystery of ALS and find the key to treatments a cure. Will you
lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that
slowly robs the body of its ability to walk, speak, swallow and breathe. The
life expectancy of a person with ALS averages 2 to 5 years from the time of
strike anyone. Presently there is no known cause of the disease, yet it still
costs loved ones an average of $250,000 a year to provide the care people
living with ALS and their families need. Join the movement to provide help and