Hi there! My name is John and for the last seven years, we have been Jaywalkin' for Johni at the ALS Association - Walk to Defeat ALS.
ALS entered my life when my mom, Johni, told me on my birthday in 2012 that she was diagnosed with this terrible disease. While many pALS (people with ALS) live only 2 to 5 years after their diagnosis, Johni only lived another 2 months. Quite honestly, the grief I've experienced can be overwhelming at times but I choose to focus that grief in helping others in the ALS community by raising funds for them.
If you'd like to learn more about my last adventure with my mom, check out our blog at www.thebuckettripbyjvw.blogspot.com
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90minutes a person in this country is diagnosed with ALS and every 90 minutesanother person will lose their battle against this disease. ALS occursthroughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s whywe’re participating in the Walk to Defeat ALS. To bring hope. To raiseawareness. To provide resources and services to families free of charge. Tohelp unlock the mystery of ALS and find the key to treatments a cure. Will youjoin us?
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis.
ALS canstrike anyone. Presently there is no known cause of the disease, yet it stillcosts loved ones an average of $250,000 a year to provide the care peopleliving with ALS and their families need. Join the movement to provide help andhope today!