10/18/2014 mom was diagnosed with ALS. I knew from previous research there was no cure for this disease and the only medication available given to her by her neurologist made her feel worst than the disease itself. My mom, doctor and our family came to the heartbreaking decision to stop the medication and to try and make her last few years, months or days with us the most comfortable and happiest as possible. We struggled everyday, with ignorance from the very people that should have know about the disease and most often we educated them about ALS. I know she suffered the most, yet she was so strong and her faith in the Lord was undeniably stronger than ever. Even though she was no longer able to move or eat on her own and it was almost impossible to understand her and most times we played guessing games with her, (she couldn't help but laugh sometimes!) we still prayed and hoped for a cure. We waited for a cure.. unfortunately she couldn't wait anymore, disease took total control of her body but not her mind and her courageous spirit. She refused to give up and fought until her last days, she refused to be in bed day and night and insisted on being transfered to a couch during the day so she could watch tv and her novelas.
March 7, 2017 she took her last breath.
She rests now, no longer in pain, no longer trapped in her own body.
We walk for a cure so no one has to suffer like she did. We walk so no family goes through the heartbreaking pain of losing a loved one.
Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.