10/18/2014 sitting in a cold room at the Neurologist office watching him examine mom and listening to him as he kept repeating to his students.. This finding is consistent with Motor Neuron Disease.. I was in a haze, in denial, I heard those words before but not what I needed or wanted to hear. At the end of his consultation he gave the diagnosis of ALS, disease I knew from previous research that had no cure and there was only one medication available that could help extend life by a few more months. The doctor prayed for mom and we left with a prescription for the only approved medication, only to find a few weeks into mom taking it that the medicine side effects were worst than the disease itself and mom, doctor and family came to the decision to stop the medication. Our only hope was no longer an option. Mom had always been a very active woman, full of life! She dedicated her life to her children, family, and her little animalitos. Sometimes she would come back from the store with a cat or a dog she found on the street about to be runned over or very skinny close to death (in a matter of weeks that poor cat or dog was so fat it could barely walk!) her house was full of them, she loved them, she was very happy and active. For a year or so we went from doctor to doctor trying to find a diagnosis for her symptoms and the day we finally had it was the worst day ever for the family. Our family decided then to make her days with us the most comfortable and happiest as possible. We struggle everyday, with ignorance from the very people that should know about the disease and most often we educate them on ALS. I know she suffers the most, yet she is so strong and her faith in the Lord is still undeniably strong. She is no longer able to move or eat on her own, it's almost impossible to understand her and most times we play guessing games with her, she can't help but laugh sometimes! Even though her condition has deteriorated significantly we still pray and have hope for a cure. I just hope it gets here fast and that bureaucracy puts human lives before personal interests or money.
Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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