“Not today ALS. Not. Today.” is a slogan that has been coined by Brian Wallach, founder of IAMALS.org, another organization working towards ending this disease. Kay and I have taken this mantra to heart. It will be said today and EVERY day, and will be especially true when the K-Team participates in their fifth Walk to Defeat ALS put on by the Orange County ALS Association. This year’s Walk is November 13th, 2021 and is a Drive-Through AND In-Person event. We are hoping that you’ll join us, either in person or virtually, as we support the organization that stands with us in so many tangible ways.
Last year’s event was a success, especially given the pandemic-ness of 2020. The “Walk” was a parade of supporters in their vehicles driving through the Association’s parking lot, decked out in festive colors and fun decorations. Many of us shared in the event by viewing it on the Web, waving at friends and sponsors, cheering the parade on.
As we get more details about the in-person portion of the 2021 Walk, announced for Irvine, we’ll bring them to you so you can join us, either there or virtually.
Even though this year has allowed us to return to normal things like face to face visits at the UCI ALS Clinic, we still must deal with managing Kay’s ALS. We’ve come to lean more on the Orange County ALS Association for help with adjustments to her power wheelchair, finding sources of in-home care and navigating options for a hospital bed. Other support has come from organizations like Team Gleason, which provided assistance in securing Kay’s Tobii Dynavox communication device. As a side note, Steve Gleason’s story is very inspiring and the Team’s website is www.teamgleason.org. You can also see teamgleason’s post about Kay at https://www.instagram.com/p/CP8LlpJHbU5/. Kay’s Tobii is so helpful in keeping her connected via social media and she’s using it more as her “voice”.
So we’re very thankful to the ALS Association for their help in making our daily lives easier, even though some days are not necessarily easy. They also helped us with one of our few days out, coordinating our day at Angel Stadium for Major League Baseball’s first Lou Gehrig Day, recognizing the Hall of Famer’s legacy. Though the Angels lost, it was still a wonderful time!
Because the Orange County ALS Association is such a vital support on our journey, we’d like to pay them back in this small way. And we’d love to have you join us by supporting this year’s Walk.
By making a one-time, tax-deductible donation, you can truly make a difference in the fight against ALS. Just visit our online fundraising website listed below to make a donation or to join us in Irvine on November 13th.
Any amount you feel comfortable giving is deeply appreciated. Every dime makes a difference! As always, we also appreciate your well wishes and prayers for a great event.
With your support, we can continue making a positive impact today in the lives of those living with Lou Gehrig’s Disease.